My Leap List

Tuesday, September 27, 2016

     This cute boy is my Nick in happier days.  If you have never had to deal with anxiety, you can't imagine how destructive it can be to the person in its grasp.  I was one of the lucky ones that thought it was just mildly uncomfortable until I saw it sucking the life out of my son.            Over the years Nick has become a shell of himself.  He rarely leaves the house, even when it is something he wants to desperately attend.  The anxiety is so intense, it has caused him to hallucinate scary things that aren't real.  This started in 5th grade when he started seeing "blue" kids in his class that no one else could see.  Today they are horrific things that get inside our home and tell him horrible things.  He tries everything to keep them away, but even the medication can't touch it; yet.  It got so bad last week, he shut down and a new personality came out to talk to us.  His name is Alex.  He is scared for my Nick.      Nick went to his psychiatrist today who said that the anxiety is much more serious than she thought.  She still thinks the anxiety is the cause of the hallucinations.  It's a strange thing to pray that she is right and that the increased medication will help.  I am praying for the strength to deal with the possibility of schizophrenia or split personality disorder.  I am also praying for the strength to be whatever I can be for him and not let my emotions cause him more harm.  I am grateful for the doctor, for all of you sending prayers and love on his behalf, and that for some reason God chose me to have such a beautiful spirit in my life.  I am truly blessed.  

Monday, September 12, 2016

Even Though We Never Met, My Brother Still Touches My Life

      32 years ago my baby brother Tyler died. 
 Although I never met him in life, he has touched my life and changed me for the better.  When I was 15 years old, my brother was stillborn because the cord wrapped around his neck.  My mom lost so much blood, her body kept shutting down.  The paramedics had to give her several blood transfusions and keep restarting her heart.  When  they  got  her to  the  hospital, they put her in intensive care.  She was in a coma for several weeks, and they weren't sure if she would make it.  
     Being the oldest, I did my best to take care of my brothers and sisters, but I was a poor imitation of my mom.  One day a relative I didn't know called and said, I just heard your mom died.  I am so sorry."  The caller was wrong, but I hadn't been able to see her yet, so I didn't know if she was going to die.  Every time the phone rang after that, I would shake uncontrollably.  
      The funeral for my brother was one of the hardest days of my life.  When my mom told us she was pregnant, I was angry.  I didn't want to take care of another brother or sister.  I even wished the baby would die so my life could get back to normal.  Now all I wanted to do was tell my mom and my brother how sorry I was that I had been so selfish.  My mom was still in the coma, so she couldn't go to the funeral.  Relatives kept telling me how much I looked like my mom and how proud she would be of me.  They didn't know how guilty I felt thinking everything was my fault.         
     Weeks later I finally got to go to the hospital to see my mom.  I still didn't know she was in a coma, so I was hoping to tell her what I had done and ask her forgiveness.  My mom's room was in the back of the ICU, so we had to walk through another room to get to her.  A man in the first room was strapped to his bed.  As I walked by, he said, "Please, little girl, come and untie me.  Please help me!"  I knew that would make things worse for him, but I felt miserable ignoring him and walking away.  My mom wasn't strapped to her bed, but her arms were tied to the railing so she wouldn't pull out the IV or respirator tubes.  She wasn't conscious, so I couldn't tell her what I wanted to say.  Seeing my mom in so much pain made me feel even guiltier.
     When my mom finally got well enough to come home, I was in a deep depression.  I couldn't stop thinking about death and suicide.  I stopped going to school because I was afraid my mom would die while I was gone and couldn't keep her safe.  I was in trouble at home for always sluffing school.  I couldn't sleep and when I did sleep, I had nightmares.  I felt guilty for wanting to do things with my friends when I should be taking care of my mom.  
     That spring, we went to California.  When we went to the beach, I walked down the pier and stared at the waves for a long time trying to decide whether to jump or not.  The water was beautiful and calling to me.  While I was standing there, I heard a voice.  I turned, but no was there.  I turned back to the water, but I heard the voice again.  This time it said, "What would it feel like to kill yourself and then find out your soul mate was still on Earth waiting for you?"  I turned, and no one was there, but a perfect white feather drifted out of the sky.  A sign from my guardian angel.  I walked back to my family hoping things would get better if I kept my faith and tried my best.     
  It turned out my guardian angel was right.  Today I am blessed to be able to help others through their darkness.  It is my way to pay forward my angel's gift of life.  Today I celebrate my brother and the lessons he has taught me about myself, life, forgiveness, and redemption.  I wouldn't be the person I am today without him.  Even though we never met, he still touches my life every day.  I can't wait to see him in Heaven and thank him in person someday.  Happy Birthday, Tyler.  I love you.  

Saturday, September 10, 2016

      28 years ago, John asked me if I would spend the rest of my life with him.  Today we celebrated that day by attending the NAMI walk.  The picture doesn't show how thrilled I was John was well enough to go with me.  This is a huge change for us, and I am thankful for the doctor and the experimental medicine that made today possible.
      John has always struggled with severe depression.  I convinced him to go to the doctor for help and that led to endless medications that ranged from useless to making him hallucinate and become psychotic.  He dealt with this for 26 years of our life together.  There were some dark moments when I doubted either of us would make it out alive, but he never gave up on trying.  
     In those years Mandy and Nick joined our small family and faced their own battles.  Mandy spent a year cutting her legs with a razor blade and I never knew anything.  She wore long pants and hid her pain masterfully.  She finally told me because she was taking a ballet class and knew I would see her scars with her costume.  When I saw the scars, I was horrified at how much pain my precious daughter had gone through.  Two of the scars were so large and ragged, I was surprised that she hadn't bled to death.  The guilt of not knowing and not helping her were difficult.
     Nick faced his own battles with anxiety that became so severe he started seeing ghosts in 5th grade.  His doctor told me that was his way of dealing with extreme anxiety.  Panic attacks became regular occurrences in his world.  He stopped sleeping.  His doctor told me that I should prepare myself for having him develop Agoraphobia, the fear of leaving the house.  His struggles have worsened as he got older, and medication and therapy haven't helped him very much.  He is trying to finish his senior year online so he can graduate, but even that is difficult for him to do.  I am thrilled when he goes to the store with me or for a walk, but it's hard to see him white knuckling his way through it.  He hides in his jacket and takes keys or something to endlessly rub to keep his anxiety in check for the few minutes we are away.  At night his anxiety gets the best of him and he hears and sees things that aren't there.  It's scary for both of us.  He handles it with grace.  He still smiles, tells me not to worry, and has the kindest spirit of anyone I know.
     John and Mandy have been able to find medication to help them the past two years.  Mandy was diagnosed with Chronic Fatigue Syndrome and Bipolar Disorder.  The medication they gave her turned her life around.  She is now a happy, well-adjusted college student.  She works and goes to school and is dedicated to making a difference for others who have struggled.  Many people who experience bipolar episodes don't take their medicine because they don't like the way it makes them feel.  I am forever grateful that Mandy is not that way.  When she feels an episode coming on, she is quick to make sure she takes her medicine to stave it off.
     After years of trying every medicine available and not seeing anything work, John was ready to give up on even trying.  His psychiatrist asked me to come to John's appointment.  He told me that he had a medicine that was being used off label, but had show promise in some of his patients that didn't respond to anything else.  He needed my permission to give it to John because he didn't think John was able to make that decision for himself.  It has dangerous side effects and can kill you unexpectedly.  I couldn't believe I was being asked to make that kind of decision.  I cried for a while, but then I told him I wanted John to have the treatment because he was going to kill himself if things didn't change.  The medicine has been a life saver for him, even though it is a horrible experience for him every time he takes it.  I could see the change immediately, but he couldn't see it for a few months.  When we returned a few weeks later, John told the doctor that it hadn't had any positive effects and the side effects were horrible.  I had to interrupt and tell the doctor how much it was helping.  Within a few more weeks, other people were noticing the changes in him, including the dentist and the people at the store.  John has been so brave to keep taking it even though he hates it.  The medicine never reacts the same way, so he never knows what to expect.  Sometimes he gets sick, hallucinates, hears sounds, feels like he is dying, gets horrible headaches, etc.  But he does it anyway because he knows it will help him when it is over.  When the side effects wear off, he spends the next day with a bad headache, but then he has 3-4 days like a normal person.  
     I am beyond grateful for the past two years with him.  I was beginning to lose hope.  I finally told God that I couldn't do it anymore and I was putting it in his hands with faith that all would be well.  It has been a powerful lesson for me on faith and love.  Now I am practicing faith again and placing Nick in God's hands.  My prayers may not be answered the way I want them to be, but I know all will be well.  In the meantime, I am surrounding him with love.    
     For some unknown reason, or for the reason that nothing in life is coincidental, an email came from NAMI.  I don't usually open emails from people I don't know, but I felt compelled to open it.  When I read about the walk, I knew I needed to be there.  There is so much stigma for so many people in the world for so many things, and it makes me sad that people judge my family by their struggles without knowing where we have been.  It makes me sad many turn to suicide because they can't talk about their pain or struggles without feeling more isolated or alone when they are judged.  I wanted to be there today to represent the people who don't have anyone to speak for them.  When John said he would go with me, I couldn't stop smiling.  He wouldn't have had the interest or stamina to walk with me, even a few months ago.  It was an amazing anniversary to be able to hold his hand and walk on a beautiful fall day for a cause that we know so well.  With God's grace all things are possible.

Note - My family said I could share their stories in hopes it helps someone else.